How to Explain FOXG1 Syndrome to Friends and Family
When your child is diagnosed with a rare condition like FOXG1 syndrome, one of the hardest parts can be figuring out how to explain it to others. Friends, relatives, even well-meaning strangers may ask questions you weren’t prepared to answer.
Soumya Pal’s Path to FOXG1 Research in Buffalo
Meet Soumya!
Her journey into neuroscience led her all the way to the FOXG1 Research Center—where the science feels deeply personal.
As she shared: “Meeting FOXG1 families reminded me that every step forward in the lab is a step toward hope for real children and their families.”
Back-to-School Tips for FOXG1 Families
Back-to-school season always brings a mix of emotions for parents—excitement, nerves, and a little bit of exhaustion. For FOXG1 families, that mix is often amplified. New teachers, new classrooms, new routines, and new challenges can feel overwhelming when your child requires extra care and accommodations.
Behind the Research: Meet Hyeryeong Park
If you’ve ever wondered how a complex research lab runs smoothly—with dozens of team members, layers of compliance, and critical timelines—there’s a good chance someone like Hyeryeong Park is working quietly, diligently behind the scenes.
A Spark of Hope: Yenyen’s Milestone Moment with FOXG1 Syndrome
Read about Yenyen’s inspiring milestone living with FOXG1 syndrome and how therapy, love, and community support helped her progress. Learn more and connect with FOXG1 families.
A FOXG1 Mom Turns Author: How Amber Partisano's Journey Inspired Our Fox Rocks
FOXG1 Research Center is proud to showcase Amber Partisano, a FOXG1 mom and author!