Meet Shin Jeon, PhD
Meet Meet Shin Jeon, PhD- A scientist whose dedication helped shape the FOXG1 Research Center from the very beginning!
What FOXG1 Awareness Really Means: Beyond the Month of November
November is FOXG1 Awareness Month, a time when families, researchers, and advocates around the world come together to shine a light on a rare condition that connects us all. But true awareness is not defined by a single month.
What to Say (and Not Say) to a FOXG1 Family
If you’ve ever wondered what to say or how to show up for a FOXG1 family, here’s some help!
Meet Meagan Hutchinson MD-PhD Candidate Bridging Clinical Care and FOXG1 Research
At the FOXG1 Research Center, Meagan Hutchinson helps connect research and families - turning data into hope for those living with FOXG1 syndrome.
Meet Seon-Ung Hwang, PhD, Research Faculty at the FOXG1 Research Center
Today, we’re sharing the story of Seon-Ung Hwang, PhD, a postdoctoral researcher whose
journey from South Korea to Buffalo - and from embryology to patient-derived stem cells -
reflects both the challenges and the quiet hope behind FOXG1 science.
How to Explain FOXG1 Syndrome to Friends and Family
When your child is diagnosed with a rare condition like FOXG1 syndrome, one of the hardest parts can be figuring out how to explain it to others. Friends, relatives, even well-meaning strangers may ask questions you weren’t prepared to answer.
Soumya Pal’s Path to FOXG1 Research in Buffalo
Meet Soumya!
Her journey into neuroscience led her all the way to the FOXG1 Research Center—where the science feels deeply personal.
As she shared: “Meeting FOXG1 families reminded me that every step forward in the lab is a step toward hope for real children and their families.”
Back-to-School Tips for FOXG1 Families
Back-to-school season always brings a mix of emotions for parents—excitement, nerves, and a little bit of exhaustion. For FOXG1 families, that mix is often amplified. New teachers, new classrooms, new routines, and new challenges can feel overwhelming when your child requires extra care and accommodations.
Behind the Research: Meet Hyeryeong Park
If you’ve ever wondered how a complex research lab runs smoothly—with dozens of team members, layers of compliance, and critical timelines—there’s a good chance someone like Hyeryeong Park is working quietly, diligently behind the scenes.
A Spark of Hope: Yenyen’s Milestone Moment with FOXG1 Syndrome
Read about Yenyen’s inspiring milestone living with FOXG1 syndrome and how therapy, love, and community support helped her progress. Learn more and connect with FOXG1 families.
Driven by Curiosity, Grounded in Purpose: Valli’s Journey into FOXG1 Research
“The families’ strength, their hope—it stayed with me. It made everything feel personal.”
In our latest spotlight, meet Valli: a scientist whose story is grounded in persistence, curiosity, and a deep sense of connection to the FOXG1 community.
Why Mutation-Specific Research Matters for FOXG1 Syndrome
Why Mutation-Specific Research Matters for FOXG1 Syndrome
A New Study Published in Nature Communications Offers Deeper Insight Into the Most Common Mutation Type in FOXG1 Syndrome.
Quiet Contributions, Powerful Impact: Muhua Liu’s Story
Whether it’s cryosectioning delicate brain tissue, maintaining healthy cell cultures, or ensuring accurate genotyping, Muhua’s quiet precision and steady presence help make critical research possible.
What You Don’t See: The Hidden Strength of Rare Disease Families
There’s a quiet kind of strength that rarely makes it into conversation.
It’s not the kind of strength that shows up in headlines or highlight reels. It’s not loud or flashy. But in the rare disease world — and especially within the FOXG1 community — it’s everywhere.
You just have to know where to look.
From Hesitation to Hope: Meet Dongjun Shin, PhD Student at the FOXG1 Research Center
When Dongjun Shin first stepped into the FOXG1 Research Center, he wasn’t sure if a PhD was the right path for him. Now, he’s deep into a thesis that could help transform how we understand and treat FOXG1 syndrome — and he wouldn’t have it any other way.
How to Support a Rare Disease Family: Advice That Applies Beyond FOXG1
“When the road is hard, the people who walk beside you matter most.”
When a family you love is handed a rare disease diagnosis — like FOXG1 syndrome — you want to help. You might drop off a casserole, send a heartfelt text, or offer to babysit. And then… life goes on. But for the family? Life doesn’t go back. It becomes something entirely new.
Meet Dr. Lian Cai: Using Stem Cells to Unlock Clues About FOXG1
Meet Dr. Lian Cai: Using Stem Cells to Unlock Clues About FOXG1. Dr. Lian Cai came to the U.S. from halfway across the world — originally from China, with advanced training in South Korea — to join the Lee Lab at the University at Buffalo, home of the FOXG1 Research Center.
Building a Supportive Community: Resources and Networks for FOXG1 Families
When a child is diagnosed with FOXG1 syndrome, families often find themselves navigating an unfamiliar and challenging journey. While medical research and therapy options continue to advance, one of the most powerful resources available to families is a strong, supportive community. Finding others who understand your experiences can provide emotional support, practical advice, and a sense of belonging.