FOXG1 Research Center is proud to showcase Amber Partisano, a FOXG1 mom and author!

5 Tips for Navigating Life After a FOXG1 Diagnosis

When your child is diagnosed with FOXG1 syndrome, it can feel overwhelming. You’re stepping into a world filled with medical jargon, complex decisions, and uncharted territory. While every family’s journey is unique, here are five practical tips to help you navigate this new chapter with confidence, care, and the support of the FOXG1 community.

At the FOXG1 Research Center, every team member brings a unique story and passion to their work. This month, we’re excited to introduce Sophia (Xuefang), a research technician whose journey to the lab reflects resilience, curiosity, and an unshakable commitment to making a difference.

Every November, we come together as a community to shine a light on FOXG1 syndrome—a rare genetic disorder that profoundly affects the lives of countless families around the world. FOXG1 Awareness Month is a time to increase understanding, spread compassion, and rally support for the research needed to bring hope and progress.

Our latest research at the FOXG1 Research Center shows promising results using gene therapy to restore brain structures affected by FOXG1 syndrome. This breakthrough brings new hope for future treatments targeting the root cause of the disorder. Stay tuned for more updates!

We are thrilled to announce we are hosting an opening ceremony on Tuesday, September 24, 2024.