Every November, we come together as a community to shine a light on FOXG1 syndrome—a rare genetic disorder that profoundly affects the lives of countless families around the world. FOXG1 Awareness Month is a time to increase understanding, spread compassion, and rally support for the research needed to bring hope and progress.

Our latest research at the FOXG1 Research Center shows promising results using gene therapy to restore brain structures affected by FOXG1 syndrome. This breakthrough brings new hope for future treatments targeting the root cause of the disorder. Stay tuned for more updates!

We are thrilled to announce we are hosting an opening ceremony on Tuesday, September 24, 2024.